Million people reached.
Advocates
Billboards
SHARES
Likes
Million people reached
4 Advocates | 600 Billboards | 1147 Shares | 679 Likes
Sanius Health: Standing Up for Sickle Cell Disease
Sickle Cell Disease (SCD) affects over 15,000 people in the UK. With the exception of those within or connected to the SCD patient community, very few are aware of the challenges presented in addressing care for this condition.
As part of our efforts to support SCD patients, clinicians and the wider community, we have launched an international campaign this Sickle Cell Disease Awareness month.
Our motivation is to raise much-needed awareness around SCD as a condition; particularly around associated end-organ damage, quality of life and larger health inequalities. In partnership with patients, clinicians and research organisations, our awareness campaign bridges critical knowledge gaps around the condition; and highlights the importance of collaboration for better care and opportunities for the SCD community.
Our Partners /
Input from /
Our Focus and Partners /
We are thankful for the patient organisations, clinicians and research partners who are working with us to advance patient outcomes in Sickle Cell Disease. Shared thinking with global organisations ensures that our campaign echoes the true patient voice. The engagement activities we are running with patients for Sickle Cell Disease Awareness Month will build on the ongoing success of our current patient workshops, podcasts and social media campaigns.
In addition, participation in thought leadership content from healthcare professionals at Barts Health, Bristol, Oxford University Hospital, London Northwest University Hospital, Imperial College London and others, have deepened our campaign’s clinical focus and perspective. We are also working with members of the National Healthcare Inequalities Improvement Programme NHS England, to align and execute our campaign’s focus.
75% of people living with Sickle Cell Disease are most commonly treated in the 100 most deprived regions of the country. Across the 100 least deprived areas of the country, this is only 3%.
Sickle Cell Awareness Campaign /
Sanius Health: Standing Up for Sickle Cell Disease
Sickle Cell Disease (SCD) affects over 15,000 people in the UK. With the exception of those within or connected to the SCD patient community, very few are aware of the challenges presented in addressing care for this condition.
As part of our efforts to support SCD patients, clinicians and the wider community, we have launched an international campaign this Sickle Cell Disease Awareness month.
Our motivation is to raise much-needed awareness around SCD as a condition; particularly around associated end-organ damage, quality of life and larger health inequalities. In partnership with patients, clinicians and research organisations, our awareness campaign bridges critical knowledge gaps around the condition; and highlights the importance of collaboration for better care and opportunities for the SCD community.
Our Partners /
Input from /
Our Focus and Partners /
We are thankful for the patient organisations, clinicians and research partners who are working with us to advance patient outcomes in Sickle Cell Disease. Shared thinking with global organisations ensures that our campaign echoes the true patient voice. The engagement activities we are running with patients for Sickle Cell Disease Awareness Month will build on the ongoing success of our current patient workshops, podcasts and social media campaigns.
In addition, participation in thought leadership content from healthcare professionals at Barts Health, Bristol, Oxford University Hospital, London Northwest University Hospital, Imperial College London and others, have deepened our campaign’s clinical focus and perspective. We are also working with members of the National Healthcare Inequalities Improvement Programme NHS England, to align and execute our campaign’s focus.
A global effort
Improving the care and lives of those with Sickle Cell Disease requires a unified and global effort. It is only through close work with those who understand the condition intimately, that we can truly make a difference on behalf of patients and their clinical teams. We hope that with our collective effort, we can uplift previously unheard patient voices, and share their experiences globally.
Latest updates from the campaign :
This is What Sickle Cell Disease Looks Like: The Lived, Day-to-Day Perspective.
This is What Sickle Cell Disease Looks Like: The Lived, Day-to-Day Perspective. Lea Kilenga Masimo...
This is What Sickle Cell Disease Looks Like: The Research Perspective
This is What Sickle Cell Disease Looks Like: The Research Perspective Eric Low, a thought leader...
This is What Sickle Cell Looks Like: The German Patient Perspective
This is What Sickle Cell Looks Like: The German Patient PerspectiveElvie Ingoli, President of the...
This is What Sickle Cell Disease Looks Like: The Lived, Day-to-Day Perspective.
This is What Sickle Cell Disease Looks Like: The Lived, Day-to-Day Perspective. Lea Kilenga Masimo...
This is What Sickle Cell Disease Looks Like: The Research Perspective
This is What Sickle Cell Disease Looks Like: The Research Perspective Eric Low, a thought leader...
This is What Sickle Cell Looks Like: The German Patient Perspective
This is What Sickle Cell Looks Like: The German Patient PerspectiveElvie Ingoli, President of the...
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Latest updates from the campaign :
This is What Sickle Cell Disease Looks Like: The Lived, Day-to-Day Perspective.
This is What Sickle Cell Disease Looks Like: The Lived, Day-to-Day Perspective. Lea Kilenga Masimo Bey, leader of the Africa Sickle Cell Organisation, speaks on the importance of listening to...
This is What Sickle Cell Disease Looks Like: The Research Perspective
This is What Sickle Cell Disease Looks Like: The Research Perspective Eric Low, a thought leader in rare disease research, speaks on the need for better collaboration across health stakeholders to...
This is What Sickle Cell Looks Like: The German Patient Perspective
This is What Sickle Cell Looks Like: The German Patient PerspectiveElvie Ingoli, President of the German Association for Sickle Cell Disease and Thalassaemia, speaks on the state of SCD care and...
A global
effort
Improving the care and lives of those with Sickle Cell Disease requires a unified and global effort. It is only through close work with those who understand the condition intimately, that we can truly make a difference on behalf of patients and their clinical teams. We hope that with our collective effort, we can uplift previously unheard patient voices, and share their experiences globally.
Write to your MP
Important: Always include your home address when you write to your MP so that they know you live in their constituency. MPs are not allow to pursue matters from people outside their constituency. There is a space included on the template letter to add your address.
If your MP follows up with questions about SIM, we would be happy to speak with them. Please direct them to our email: [email protected]
Download The Template Letter (Word File) Below And Ask Your MP To Take Action:
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WHAT SICKLE CELL LOOKS LIKE